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Jeffrey Botkin

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TOP 3
Erin Rothwell; Lauren Clark; Rebecca Anderson; Jeffrey R Botkin
Residual newborn screening samples for research: parental information needs for decision-making.
Erin Rothwell; Louisa Stark; Kathryn J Swoboda; Rebecca A Anderson; Jeffrey R Botkin
Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy.
Jeffrey R Botkin; Aaron J Goldenberg; Rebecca A Anderson; Erin Rothwell; Michelle Huckaby Lewis
Retention and research use of residual newborn screening bloodspots.

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All Publications

2013: Erin Rothwell; Lauren Clark; Rebecca Anderson; Jeffrey R Botkin
Residual newborn screening samples for research: parental information needs for decision-making.
Journal for specialists in pediatric nursing : JSPN 2013;18(2):115-22.
2013: Erin Rothwell; Louisa Stark; Kathryn J Swoboda; Rebecca A Anderson; Jeffrey R Botkin
Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy.
American journal of medical genetics. Part A 2013;161(4):679-86.
2013: Jeffrey R Botkin; Aaron J Goldenberg; Rebecca A Anderson; Erin Rothwell; Michelle Huckaby Lewis
Retention and research use of residual newborn screening bloodspots.
Pediatrics 2013;131(1):120-7.
2012: Erin Rothwell; Louisa Stark; Bob Wong; Rebecca Anderson; Matthew Burbank; Aaron Goldenberg; Michelle H Lewis; Jeffrey R Botkin
Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study.
Social science & medicine (1982) 2012;74(8):1305-9.
2012: Jeffrey R Botkin; Matthew Burbank; Aaron Goldenberg; Michelle Lewis; Erin Rothwell; Louisa Stark; Rebecca Anderson; Bob Wong
Public attitudes regarding the use of residual newborn screening specimens for research.
Pediatrics 2012;129(2):231-8.
2012: Jeffrey R Botkin
Informed consent for biobank-dependent research.
The virtual mentor : VM 2012;14(8):610-5.
2011: Erin W Rothwell; Louisa A Stark; Bob Wong; Rebecca A Anderson; Matthew J Burbank; Aaron J Goldenberg; Michelle Huckaby Lewis; Jeffrey R Botkin
Concerns of newborn blood screening advisory committee members regarding storage and use of residual newborn screening blood spots.
American journal of public health 2011;101(11):2111-6.
2011: Jeffrey R Botkin
Newborn screening for fragile x syndrome: do we care what parents think?
Pediatrics 2011;127(6):e1593-4.
2011: Rebecca Anderson; Erin Rothwell; Jeffrey R Botkin
Newborn screening: ethical, legal, and social implications.
Annual review of nursing research 2011;29():113-32.
2010: Jeffrey R Botkin
Informed consent for genetic research.
Current protocols in human genetics / editorial board, Jonathan L. Haines ... [et al.] 2010;Chapter 1():Unit 1.16.
2010: Jeffrey R Botkin
Evidence-based reviews of newborn-screening opportunities.
Pediatrics 2010;125(5):e1265-6.
2010: Jeffrey R Botkin; Steven M Teutsch; Celia I Kaye; Maxine Hayes; James E Haddow; Linda A Bradley; Kathleen Szegda; W David Dotson
Outcomes of interest in evidence-based evaluations of genetic tests.
Genetics in medicine : official journal of the American College of Medical Genetics 2010;12(4):228-35.
2009: Alfred O Berg; Macaran A Baird; Jeffrey R Botkin; Deborah A Driscoll; Paul A Fishman; Peter D Guarino; Robert A Hiatt; Gail P Jarvik; Sandra Millon-Underwood; Thomas M Morgan; John J Mulvihill; Toni I Pollin; Selma R Schimmel; Michael Edward Stefanek; William M. Vollmer; Janet K Williams
National Institutes of Health State-of-the-Science Conference Statement: Family History and Improving Health.
Annals of internal medicine 2009;151(12):872-7.
2009: Alfred O Berg; Macaran A Baird; Jeffrey R Botkin; Deborah A Driscoll; Paul A Fishman; Peter D Guarino; Robert A Hiatt; Gail P Jarvik; Sandra Millon-Underwood; Thomas M Morgan; John J Mulvihill; Toni I Pollin; Selma R Schimmel; Michael Edward Stefanek; William M. Vollmer; Janet K Williams
National Institutes of Health State-of-the-Science Conference Statement: Family History and Improving Health: August 24-26, 2009.
NIH consensus and state-of-the-science statements 2009;26(1):1-19.
2009: Jeffrey R Botkin; Rebecca Anderson; Catherine J Staes; Nicola Longo
Developing a National Registry for conditions identifiable through newborn screening.
Genetics in medicine : official journal of the American College of Medical Genetics 2009;11(3):176-82.
2009: Jeffrey R Botkin
Assessing the new criteria for newborn screening.
Health matrix (Cleveland, Ohio : 1991) 2009;19(1):163-86.
2008: Sara Chandros Hull; Richard R Sharp; Jeffrey R Botkin; Mark Brown; Mark T Hughes; Jeremy Sugarman; Debra Schwinn; Pamela Sankar; Dragana Bolcic-Jankovic; Brian R Clarridge; Benjamin S Wilfond
Patients' views on identifiability of samples and informed consent for genetic research.
The American journal of bioethics : AJOB 2008;8(10):62-70.
2008: Virginia A Moyer; Ned Calonge; Steven M Teutsch; Jeffrey R Botkin
Expanding newborn screening: process, policy, and priorities.
The Hastings Center report 2008;38(3):32-9.
2008: Heidi A Hamann; Timothy W Smith; Ken Smith; Robert T Croyle; John M Ruiz; John C Kircher; Jeffrey R Botkin
Interpersonal responses among sibling dyads tested for BRCA1/BRCA2 gene mutations.
Health psychology : official journal of the Division of Health Psychology, American Psychological Association 2008;27(1):100-9.
2007: John F Hurdle; Jeffrey R Botkin; Thomas C Rindflesch
Leveraging semantic knowledge in IRB databases to improve translation science.
AMIA ... Annual Symposium proceedings / AMIA Symposium. AMIA Symposium 2007;():349-53.
2007: Thomas Schenkenberg; Neil K Kochenour; Jeffrey R Botkin
Ethical considerations in clinical care of the "VIP".
The Journal of clinical ethics 2007;18(1):56-63.
2006: Jeffrey R Botkin; Ellen Wright Clayton; NORMAN FOST; Wylie Burke; Thomas H Murray; Mary Ann Baily; Benjamin S Wilfond; Alfred Berg; Lainie Friedman Ross
Newborn screening technology: proceed with caution.
Pediatrics 2006;117(5):1793-9.
2006: William M McMahon; Bonnie Jeanne Baty; Jeffrey R Botkin
Genetic counseling and ethical issues for autism.
American journal of medical genetics. Part C, Seminars in medical genetics 2006;142C(1):52-7.
2005: Jeffrey R Botkin
Informed consent for genetic research.
Current protocols in human genetics / editorial board, Jonathan L. Haines ... [et al.] 2005;Chapter 1():Unit 1.16.
2005: Jeffrey R Botkin
Research for newborn screening: developing a national framework.
Pediatrics 2005;116(4):862-71.
2005: Lee Ellington; Debra Roter; William N Dudley; Bonnie Jeanne Baty; Renn Upchurch; Susan Larson; Jean E Wylie; Ken Smith; Jeffrey R Botkin
Communication analysis of BRCA1 genetic counseling.
Journal of genetic counseling 2005;14(5):377-86.
2005: Leslie P Francis; Margaret P Battin; Jay A Jacobson; Charles B Smith; Jeffrey R Botkin
How infectious diseases got left out--and what this omission might have meant for bioethics.
Bioethics 2005;19(4):307-22.
2005: Jeffrey R Botkin
Addressing the "petty tyranny" of IRBs.
American journal of medical genetics. Part A 2005;134(3):240-1.
2004: Laura M Beskow; Jeffrey R Botkin; Mary Daly; Eric T Juengst; Lisa Soleymani Lehmann; Jon F Merz; Rebecca Pentz; Nancy A Press; Lainie Friedman Ross; Jeremy Sugarman; Lisa R Susswein; Sharon F Terry; Melissa A Austin; Wylie Burke
Ethical issues in identifying and recruiting participants for familial genetic research.
American journal of medical genetics. Part A 2004;130A(4):424-31.
2004: Scott D Grosse; Coleen A Boyle; Jeffrey R Botkin; Anne Marie Comeau; Martin Kharrazi; Margaret Rosenfeld; Benjamin S Wilfond
Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs.
MMWR. Recommendations and reports : Morbidity and mortality weekly report. Recommendations and reports / Centers for Disease Control 2004;53(RR-13):1-36.
2004: Ken Smith; Lee Ellington; Anna Y Chan; Robert T Croyle; Jeffrey R Botkin
Fertility intentions following testing for a BRCA1 gene mutation.
Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology 2004;13(5):733-40.
2004: Charles B Smith; Margaret P Battin; Jay A Jacobson; Leslie P Francis; Jeffrey R Botkin; Emily P Asplund; Gretchen J Domek; Beverly Hawkins
Are there characteristics of infectious diseases that raise special ethical issues?
Developing world bioethics 2004;4(1):1-16.
2003: Vickie Venne; Jeffrey R Botkin; Saundra S Buys
Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption.
American journal of medical genetics. Part A 2003;119A(1):41-6.
2003: Jean E Wylie; Ken Smith; Jeffrey R Botkin
Effects of spouses on distress experienced by BRCA1 mutation carriers over time.
American journal of medical genetics. Part C, Seminars in medical genetics 2003;119C(1):35-44.
2003: Jeffrey R Botkin; Ken Smith; Robert T Croyle; Bonnie Jeanne Baty; Jean E Wylie; Debra Dutson; Anna Chan; Heidi A Hamann; Caryn Lerman; Jamie McDonald; Vickie Venne; John H Ward; Elaine Lyon
Genetic testing for a BRCA1 mutation: prophylactic surgery and screening behavior in women 2 years post testing.
American journal of medical genetics. Part A 2003;118A(3):201-9.
2003: Michael J. Green; Jeffrey R Botkin
"Genetic exceptionalism" in medicine: clarifying the differences between genetic and nongenetic tests.
Annals of internal medicine 2003;138(7):571-5.
2003: Wendy R Uhlmann; Robin Bennett; Jeffrey R Botkin; David Botstein; Joann Boughman; Aravinda Chakravarti; Ellen Wright Clayton; Jeffrey Kahn; Barbara Koenig; Thomas H Murray; Maynard V Olson; Janet Rowley; Sharon Terry; David Valle
Planning the genome institute's future.
Science (New York, N.Y.) 2003;299(5612):1515; author reply 1515.
2003: Jeffrey R Botkin
Prenatal diagnosis and the selection of children.
Florida State University law review. Florida State University. College of Law 2003;30(2):265-93.
2003: Jeffrey R Botkin
Preventing exploitation in pediatric research.
The American journal of bioethics : AJOB 2003;3(4):31-2.
2002: Wylie Burke; Louise Acheson; Jeffrey R Botkin; Kenneth Bridges; Ardis Davis; James P Evans; Jaime Frias; James Hanson; Norman Kahn; Ruth Kahn; David Lanier; Linda E Pinsky; Nancy A Press; Puryear Michele; Eugene Rich; Nancy G Stevens; Elizabeth Thomson; STEVEN WARTMAN; Modena E H Wilson
Genetics in primary care: a USA faculty development initiative.
Community genetics 2002;5(2):138-46.
2002: Ken Smith; Cathleen D Zick; Robert N Mayer; Jeffrey R Botkin
Voluntary disclosure of BRCA1 mutation test results.
Genetic testing 2002;6(2):89-92.
2001: Jeffrey R Botkin; Ellen Wright Clayton; R Nelson; Benjamin S Wilfond; M A Munger
Salmeterol and inhaled corticosteroids in patients with persistent asthma.
JAMA : the journal of the American Medical Association 2001;286(24):3075; author reply 3077-8.
2000: Cathleen D Zick; Ken Smith; R N Mayer; Jeffrey R Botkin
Genetic testing, adverse selection, and the demand for life insurance.
American journal of medical genetics 2000;93(1):29-39.
2000: Heidi A Hamann; Robert T Croyle; Vickie Venne; Bonnie Jeanne Baty; Ken Smith; Jeffrey R Botkin
Attitudes toward the genetic testing of children among adults in a Utah-based kindred tested for a BRCA1 mutation.
American journal of medical genetics 2000;92(1):25-32.
1999: Ken Smith; J A West; Robert T Croyle; Jeffrey R Botkin
Familial context of genetic testing for cancer susceptibility: moderating effect of siblings' test results on psychological distress one to two weeks after BRCA1 mutation testing.
Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology 1999;8(4 Pt 2):385-92.
1998: Jeffrey R Botkin; W M McMahon; K R Smith; J E Nash
Privacy and confidentiality in the publication of pedigrees: a survey of investigators and biomedical journals.
JAMA : the journal of the American Medical Association 1998;279(22):1808-12.
1998: Jeffrey R Botkin
Ethical issues and practical problems in preimplantation genetic diagnosis.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 1998;26(1):17-28, 3.
1997: Gail Geller; Jeffrey R Botkin; Michael J. Green; Nancy A Press; Barbara Bowles Biesecker; Benjamin S Wilfond; G Grana; M B Daly; K Schneider; M J Kahn
Genetic testing for susceptibility to adult-onset cancer. The process and content of informed consent.
JAMA : the journal of the American Medical Association 1997;277(18):1467-74.
1997: Wylie Burke; M Daly; Judy E Garber; Jeffrey R Botkin; MJ Kahn; P Lynch; Anne McTiernan; Kenneth Offit; J Perlman; G Petersen; Elizabeth Thomson; C Varricchio
Recommendations for follow-up care of individuals with an inherited predisposition to cancer. II. BRCA1 and BRCA2. Cancer Genetics Studies Consortium.
JAMA : the journal of the American Medical Association 1997;277(12):997-1003.
1997: Wylie Burke; G Petersen; P Lynch; Jeffrey R Botkin; M Daly; Judy E Garber; MJ Kahn; Anne McTiernan; Kenneth Offit; Elizabeth Thomson; C Varricchio
Recommendations for follow-up care of individuals with an inherited predisposition to cancer. I. Hereditary nonpolyposis colon cancer. Cancer Genetics Studies Consortium.
JAMA : the journal of the American Medical Association 1997;277(11):915-9.
1997: Robert T Croyle; Ken Smith; Jeffrey R Botkin; Bonnie Jeanne Baty; J Nash
Psychological responses to BRCA1 mutation testing: preliminary findings.
Health psychology : official journal of the Division of Health Psychology, American Psychological Association 1997;16(1):63-72.
1996: Jay A Jacobson; E Kasworm; M P Battin; L P Francis; D Green; Jeffrey R Botkin; S Johnson
Advance directives in Utah. Information from death certificates and informants.
Archives of internal medicine 1996;156(16):1862-8.
1996: Jeffrey R Botkin; Robert T Croyle; Ken Smith; B J Baty; C Lerman; David E Goldgar; J M Ward; B J Flick; J E Nash
A model protocol for evaluating the behavioral and psychosocial effects of BRCA1 testing.
Journal of the National Cancer Institute 1996;88(13):872-82.
1995: Jeffrey R Botkin
Fetal privacy and confidentiality.
The Hastings Center report 1995;25(5):32-9.
1995: Jeffrey R Botkin
Genetic counseling: making room for beneficence.
The Journal of clinical ethics 1995;6(2):182-4.
1995: Jay A Jacobson; E M Kasworm; M P Battin; Jeffrey R Botkin; L P Francis; D Green
Decedents' reported preferences for physician-assisted death: a survey of informants listed on death certificates in Utah.
The Journal of clinical ethics 1995;6(2):149-57.
1994: D E Leonhardt; Jeffrey R Botkin; Robert E Shaddy
Equitable distribution in pediatric heart transplantation. Arguments in favor of a national list.
Archives of pediatrics & adolescent medicine 1994;148(3):316-20.
1992: Jeffrey R Botkin
The seductive beauty of physiology.
The Journal of clinical ethics 1992;3(4):274-7.
1989: S V McCrary; Jeffrey R Botkin
Hospital policy on advance directives. Do institutions ask patients about living wills?
JAMA : the journal of the American Medical Association 1989;262(17):2411-4.
1988: Jeffrey R Botkin
The fire-safe cigarette.
JAMA : the journal of the American Medical Association 1988;260(2):226-9.
1988: Jeffrey R Botkin
The legal concept of wrongful life.
JAMA : the journal of the American Medical Association 1988;259(10):1541-5.