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Amy McGuire

Research Profile

Concepts & Ideas

Genes & Molecular Sequences

Genome, Human

Geographic Areas

United States

Procedures

Occupations

Genomics

Living Beings

Activities & Behaviors

Physiology

Decision Making

Organizations

National Human Genome Research Institute (U.S.)

Co-author Network

Publications

TOP 3
Amy L McGuire; Laurence B McCullough; James P Evans
The indispensable role of professional judgment in genomic medicine.
Philip M Boone; Ian M Campbell; Sau Wai Cheung; Amy L McGuire; Ankita Patel; Sharon E Plon; Chad A Shaw; Zachry T Soens; Pawel Stankiewicz; Arthur L Beaudet; James R Lupski
Incidental copy-number variants identified by routine genome testing in a clinical population.
Amy L McGuire; Melody J Wang; Frank J Probst
Currents in contemporary bioethics. Identifying consanguinity through routine genomic analysis: reporting requirements.

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All Publications

2013: Amy L McGuire; Laurence B McCullough; James P Evans
The indispensable role of professional judgment in genomic medicine.
JAMA : the journal of the American Medical Association 2013;309(14):1465-6.
2013: Philip M Boone; Ian M Campbell; Sau Wai Cheung; Amy L McGuire; Ankita Patel; Sharon E Plon; Chad A Shaw; Zachry T Soens; Pawel Stankiewicz; Arthur L Beaudet; James R Lupski
Incidental copy-number variants identified by routine genome testing in a clinical population.
Genetics in medicine : official journal of the American College of Medical Genetics 2013;15(1):45-54.
2012: Amy L McGuire; Melody J Wang; Frank J Probst
Currents in contemporary bioethics. Identifying consanguinity through routine genomic analysis: reporting requirements.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2012;40(4):1040-6.
2012: Melody J Slashinski; Simon N Whitney; Laura S Achenbaum; Sheryl A McCurdy; Amy L McGuire
"Snake-oil," "quack medicine," and "industrially cultured organisms:" biovalue and the commercialization of human microbiome research.
BMC medical ethics 2012;13():28.
2012: J M Oliver; M J Slashinski; T Wang; S G Hilsenbeck; P A Kelly; Amy L McGuire
Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.
Public health genomics 2012;15(2):106-14.
2011: Amy L McGuire; Erin Ramos; Maureen E Smith; Carol P Somkin; Carol Waudby; Wendy A Wolf; Lynn G Dressler; Stephanie M Fullerton; Barbara A Koenig; Rongling Li; Cathy A McCarty; Melissa Basford; Ellen Wright Clayton
Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.
Genome research 2011;21(7):1001-7.
2011: Michael M Rey; Lorraine B Ware; Michael A Matthay; Gordon R Bernard; Amy L McGuire; Arthur L Caplan; Scott D Halpern
Informed consent in research to improve the number and quality of deceased donor organs.
Critical care medicine 2011;39(2):280-3.
2011: Jill M Oliver; Amy L McGuire
Exploring the ELSI universe: critical issues in the evolution of human genomic research.
Genome medicine 2011;3(6):38.
2011: Amy L McGuire; Wylie Burke
Health system implications of direct-to-consumer personal genome testing.
Public health genomics 2011;14(1):53-8.
2010: Amy L McGuire; Barbara J Evans; Timothy Caulfield; Wylie Burke
Science and regulation. Regulating direct-to-consumer personal genome testing.
Science (New York, N.Y.) 2010;330(6001):181-2.
2010: Amy L McGuire; Laura M Beskow
Informed consent in genomics and genetic research.
Annual review of genomics and human genetics 2010;11():361-81.
2010: A Erez; K Plunkett; V Reid Sutton; Amy L McGuire
The right to ignore genetic status of late onset genetic disease in the genomic era; Prenatal testing for Huntington disease as a paradigm.
American journal of medical genetics. Part A 2010;152A(7):1774-80.
2010: J S Swindell; Amy L McGuire; Scott D Halpern
Beneficent persuasion: techniques and ethical guidelines to improve patients' decisions.
Annals of family medicine 2010;8(3):260-4.
2010: Amy L McGuire; James R Lupski
Personal genome research : what should the participant be told?
Trends in genetics : TIG 2010;26(5):199-201.
2010: Amy L McGuire; Mary A Majumder; Scott D Halpern; J S Swindell; Laura V Yaeger; Richard A Gibbs; Thomas M Wheeler
Taking DNA from the dead.
Nature reviews. Genetics 2010;11(5):318.
2010: James R Lupski; Jeffrey G Reid; Claudia Gonzaga-Jauregui; David Rio Deiros; David C Y Chen; Lynne Nazareth; Matthew Bainbridge; Huyen Dinh; Chyn Jing; David A Wheeler; Amy L McGuire; Feng Zhang; Pawel Stankiewicz; John J Halperin; Chengyong Yang; Curtis Gehman; Danwei Guo; Rola K Irikat; Warren Tom; Nick J Fantin; Donna M Muzny; Richard A Gibbs
Whole-genome sequencing in a patient with Charcot-Marie-Tooth neuropathy.
The New England journal of medicine 2010;362(13):1181-91.
2010: Elizabeth A Nelson; Amy L McGuire
The need for medical education reform: genomics and the changing nature of health information.
Genome medicine 2010;2(3):18.
2009: Georgios Voidonikolas; Marie-Claude Gingras; Sally Hodges; Amy L McGuire; Changyi (Johnny) Chen; Richard A Gibbs; F Charles Brunicardi; William E Fisher
Developing a tissue resource to characterize the genome of pancreatic cancer.
World journal of surgery 2009;33(4):723-31.
2009: Amy L McGuire; Christina M Diaz; Tao Wang; Susan G Hilsenbeck
Social networkers' attitudes toward direct-to-consumer personal genome testing.
The American journal of bioethics : AJOB 2009;9(6-7):3-10.
2009: John Belmont; Amy L McGuire
The futility of genomic counseling: essential role of electronic health records.
Genome medicine 2009;1(5):48.
2009: Amy L McGuire; Mary Anderlik Majumder
Two cheers for GINA?
Genome medicine 2009;1(1):6.
2008: Amy L McGuire; Wylie Burke
An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons.
JAMA : the journal of the American Medical Association 2008;300(22):2669-71.
2008: Amy L McGuire; James Colgrove; Simon N Whitney; Christina Diaz; Daniel Bustillos; James Versalovic
Ethical, legal, and social considerations in conducting the Human Microbiome Project.
Genome research 2008;18(12):1861-4.
2008: Sean E McGuire; Amy L McGuire
Don't throw the baby out with the bathwater: enabling a bottom-up approach in genome-wide association studies.
Genome research 2008;18(11):1683-5.
2008: Amy L McGuire
Identifiability of DNA data: the need for consistent federal policy.
The American journal of bioethics : AJOB 2008;8(10):75-6.
2008: Simon N Whitney; Margaret Holmes-Rovner; Howard Brody; Carl E Schneider; Laurence B McCullough; Robert J Volk; Amy L McGuire
Beyond shared decision making: an expanded typology of medical decisions.
Medical decision making : an international journal of the Society for Medical Decision Making 2008;28(5):699-705.
2008: Simon N Whitney; Laurence B McCullough; Ernest Frugé; Amy L McGuire; Robert J Volk
Beyond breaking bad news: the roles of hope and hopefulness.
Cancer 2008;113(2):442-5.
2008: Amy L McGuire; Rebecca Fisher; Paul Cusenza; Kathy Hudson; Mark A Rothstein; Deven McGraw; Stephen Matteson; John Glaser; Douglas E Henley
Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider.
Genetics in medicine : official journal of the American College of Medical Genetics 2008;10(7):495-9.
2008: Amy L McGuire; Timothy Caulfield; Mildred K Cho
Research ethics and the challenge of whole-genome sequencing.
Nature reviews. Genetics 2008;9(2):152-6.
2008: Simon N Whitney; KH Alcser; Carl E Schneider; Laurence B McCullough; Amy L McGuire; Robert J Volk
Principal investigator views of the IRB system.
International journal of medical sciences 2008;5(2):68-72.
2008: Amy L McGuire; Jennifer A Hamilton; Rebecca Lunstroth; Laurence B McCullough; Alica Goldman
DNA data sharing: research participants' perspectives.
Genetics in medicine : official journal of the American College of Medical Genetics 2008;10(1):46-53.
2007: Laurence B McCullough; Amy L McGuire; Simon N Whitney
Consent: informed, simple, implied and presumed.
The American journal of bioethics : AJOB 2007;7(12):49-50; discussion W3-4.
2007: Amy L McGuire; Mildred K Cho; Sean E McGuire; Timothy Caulfield
Medicine. The future of personal genomics.
Science (New York, N.Y.) 2007;317(5845):1687.
2006: Amy L McGuire; Richard A Gibbs
Genetics. No longer de-identified.
Science (New York, N.Y.) 2006;312(5772):370-1.
2006: Amy L McGuire; Richard A Gibbs
Meeting the growing demands of genetic research.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2006;34(4):809-12.
2005: Amy L McGuire; Laurence B McCullough; Susan C Weller; Simon N Whitney
Missed expectations? Physicians' views of patients' participation in medical decision-making.
Medical care 2005;43(5):466-70.
2005: Amy L McGuire; Mary Anderlik Majumder; J Richard Cheney
The ethics of lawyer-ethicists.
The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2005;33(3):603-7.
2005: Amy L McGuire; Laurence B McCullough
Respect as an organizing normative category for research ethics.
The American journal of bioethics : AJOB 2005;5(1):W1-2.